Extraordinary lives: advancing change in rare diseases

Rare Disease Day is all about raising awareness and generating change for the 300 million people worldwide living with a rare disease. On Rare Disease Day, across the globe, the rare disease community and its supporters come together to call for more equitable access to social opportunity, treatment and care for people living with a rare disease, their families and carers.

In support of Rare Disease Day, we are extending the conversation beyond the day itself with a two-part panel discussion that draws on the experiences from different perspectives, including pharma, research, patients and their families and healthcare professionals working within the rare disease field.

We will be releasing Parts 1 and 2 on 14 March and 21 March on LinkedIn and our Instagram channels: @mededlucid @wearelucidgroup, and we’ll also be publishing a highlights report.

This is a short trailer from our discussions with the experts. Make sure you don’t miss out on the full version by following us now on LinkedIn and Instagram.

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