Extraordinary lives: Advancing change in rare diseases (Part 2) 

In support of Rare Disease Day, we’re excited to launch part 2 of our video series; Extraordinary lives: advancing change in rare diseases. 

Why is raising awareness of rare diseases so important? 
Because 300 million people worldwide are living with a rare disease. This means that, collectively, the number of people living with a rare disease is equivalent to the population of the world’s third-largest country (USA). 

While we have come a long way since the inception of Rare Disease Day, there’s still plenty of work to do. 

Part 2 of this series focuses on important topics including the role of technology and the opportunities it presents for the rare disease community. The panel also give captivating insights on how the pandemic has impacted the use of related digital technologies, the role of gene therapy, the major challenges and successes for pharma companies in supporting the rare disease community over the last 13 years, and much, much more. 

If you missed part 1, you can find this here, and you can join in the conversation by heading over to our LinkedIn page or Instagram now. 

If you’d like to know more about the work we do in rare diseases or would like advice on any healthcare communication challenges please get in touch with Clare Reynolds on LinkedIn or by email: [email protected]  

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