Extraordinary lives: Advancing change in rare diseases

Rare Disease Day is all about raising awareness and generating change for the 300 million people worldwide living with a rare disease. The global rare disease community and its supporters come together on this day to call for more equitable access to social opportunity, treatment and support for people living with a rare disease, their families and carers. 

In support of Rare Disease Day, we’re extending the conversation beyond the day itself with a two-part panel discussion that draws on experiences from different perspectives including pharma, research, patients and their families, and healthcare professionals working within the rare disease field. 

Today marks the release of part 1 of our panel discussion, focusing on the advances made since the inception of Rare Disease Day, the use and impact of social media, and what more can be done to help increase awareness, knowledge and understanding of rare diseases for everyone. 

You can join in the conversation by heading over to our LinkedIn page or Instagram now: 

If you’d like to know more about the work we do in rare diseases or would like advice on any healthcare communication challenges please get in touch with Clare Reynolds on LinkedIn or by email: [email protected] 

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